I’m not much of a roller coaster rider. I’ve been on them, a select few, but I cannot stomach the 100 feet + drops or high speeds. It leaves me dizzy for hours.
These past few days we seem to be on roller coaster that has malfunctioned and won’t let us OFF! As I mentioned in yesterdays update the situation regarding Benny’s infection in the epidural site. B”H the infection is superficial, and not deep, however, the infection needs to drain. Without getting into details of how it is drained, yesterday a doctor from anesthesia drained it in our room. What we were told at the time, it was a common procedure and helps accelerate the healing process.
This morning we were abruptly woken by about 11 doctors from the surgical team coming in the room at once to examine Benny. They were pleased with the way Benny’s wound was healing. About an hour later the infectious disease doctor came in to examine Benny too. He was not pleased with what he called an “angry wound.” Then came the oncology group, I think I counted 4 doctors. Then the resident came to check in , followed by the pain management team. Our primary oncologist came to discuss this new bump in the road or you can call it a roller coaster dive. Finally the doctor that performed Benny’s surgery came to look at the site. This surgeon was not happy with the wound either and said he is booking an OR within an hour to further drain and clean the site. So back to the OR we went. Just as we were leaving the original doctor who administered to epidural showed up as well. Luckily Benny hadn’t eaten anything (not for lack of trying) or we would have had to wait for hours for his stomach to empty out.
As we waited in the prep room, we were greeted by many familiar doctors and nurses all showing disbelief on their faces of what transpired. One after the other said they have never seen this occur. It was not comforting in the least. True everything is from Hashem (G-D) and everything happens for a reason, it is difficult when possibly dealing with human error. B”H the surgeon did what he needed to do in a short time, even though no time is short when their child is in an operating room.
…And so, here we are here in the hospital for the time being, no sense yet of when the roller coaster will be over. Once the infection heals with the help of G-D very soon, we start round 5 of chemo (generally 4 days).
I will end with a short video clip of Benny winning over the hearts of all the nurses as he is carried into the OR. His smile and laughter were contagious throughout the OR. Oddly enough it was the first time we were smiling all day!
Click on video: IMG_2574