“As Long As I Live”

We are continuing to enjoy the days at home, far away from any hospital visits B”H. The past few days we kept busy with shopping, morning walks, speech therapy sessions and a few other activities.

The highlight of my day yesterday was going to a lecture given by Rabbi Aron Margalit. A special thank you to Ladies Bikur Cholim and Duvi and Anat Blonder for sponsoring the event, with translation too!  If you were not able to make it there are still two more speaking engagements. If you have not yet read his book “As Long As I Live,” you can hear all about it in person.

I would like to share some important points he mentioned:

  • “The Power of the Tongue”  At the age of 3 he was struck with polio. At the time, there were false rumors going around that the illness was contagious airborne. In truth polio is contagious in the beginning stages but through food and water that was contaminated.  As a result, he among the 90 other children were placed in a special facility and were denied any visitors. All because of one rumor!  He lied in a bed alone staring at the ceiling for five years.
  • “Belief”  His mother believed whole heartedly that he would walk again and convinced  him to believe as well until he actually did!
  • “Two ways to approach an illness”         Fee ill or feel healthy with an illness. Truthfully, very early on, once Benny began his journey to a Refuah Shlema, I never saw him as sick B”H. He acted like and continues to act like an active baby/toddler. He too doesn’t see himself as ill B”H.
  • “Prepare for Challenges” It’s the little challenges that prepare us for the larger ones. If we don’t work hard on preparing then there is less of a chance at succeeding.  He says, there is no situation in life when one cannot help themselves. Think how you will get out of the situation.  Be cautious of your emotions, because that can cause one to fall.
  • “Stop and think Constructively”  We have a choice. The brain can control the heart.  Think of how your routine dally activities can be done more efficiently, and constructively and you won’t fall. Focus on what can be done, you will find it and Hashem with help you.

The last several weeks I have been thinking how we can prepare ourselves for the treatment that lies ahead.  I am trying to put the actual treatment out of my head, because I cannot bear to think of Benny in any pain Chas Veshalom.   What I am concentrating on is what the treatment is symbolic of. This next treatment goes directly into the nerve tissue.

The expression, “you hit a nerve,” refers to the innermost being of a person.  During the 7 weeks of Shovivim (the Torah portions we read from the Exodus to the receiving of the Torah), it is a time that we connect and delve into our innermost being, our Neshama (soul).

A few people asked me what it is that they can do as a Zechus for Benny to help him get through his next treatment.   This IY”H will be the final phase of his treatments. In essence this is what we have been preparing for all along.  Up and till this point we have been treating the external (although internal in the body), now is the time when we go into the nerves.  Now is the time to find anything hiding, in any crevice.   Now is the time, we must concentrate on the details of our actions, of the Mitzvos we perform and find that deep connection with our Neshama (soul) .  We need to really feel in our hearts and more importantly our souls the power and strength these Mitzvos can perform.

As we get closer to the time of the next phase, I will continue to elaborate on this thought.  However, until then, it is good to start the preparation so that IY”H we will succeed.

Benny helped his brother’s pick out shoes (they didn’t go for the high heels though!)


This Morning Benny walked his sister to school while pushing his toy stroller (borrowed from a friend)

Video : bennywalkstoschool


One thought on ““As Long As I Live”

  1. I read Aron Margolit’s book and heard him talk. He is very inspiring. YOU, Faigie and Ari are very inspiring,
    aunt Sheila

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